Building Awareness
Cystinosis is mostly unknown to the public. We strive to inform and educate people about this terrible illness. We hope that through the combined efforts of people like you, we can help to understand and ultimately overcome cystinosis.
Funding Research
Unlike other diseases that affect a great number of people, cystinosis research is funded entirely by donations from the grassroots efforts of foundations like ours. We are able to fund research projects for potential cures and to improve the lives of cystinosis patients because of donations from people like you.
Providing Support
Because cystinosis is so rare, many people do not know much about it. Often, it is difficult to diagnose or is misdiagnosed as diabetes because of its effect on the kidneys. Many parents begin their search online but struggle to find much information about this disease. Our goal is to offer education and resources, as