Industry Events

Nestled by the Grand River, the iconic Amway Grand Hotel hosted the Cystinosis Research Network's annual family event Friday, July 11 through Sunday, July 13, 2025. The conference was stacked with a combination of educational and open discussion panels with cystinosis experts and community members alike. The CRN family conference provides programs for all ages including daycare (ages 2-12), a teen activities room, the Speak Up Speak Out Program (ages 13-22), sibling workshops, teen and adult meet ups, networking and connection hours, and more!